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Publications

International peer review journals

2018

Bijnsdorp F, Broese van Groenou M, Francke A, Pasman, H, Evans N, Peeters C & Kruijswijk W. (2018). Zorgnetwerken: Wie zorgt voor thuiswonende ouderen aan het levenseinde. Pallium. 20. 24-27. 10.1007/s12479-018-0152-3.

Bijnsdorp F, Pasman R,  Francke A, Evans N, Peeters C, & Broese van Groenou M (2018) Who provides care in the last year of life? A description of care-network of Dutch older adults living at home, Palliative Medicine (in print).

2017

Evans N, Allotey P, Imelda JD, Reidpath DD, Pool R, The SEACO Team (2017) Social support and care arrangements of older people living alone in rural Malaysia. Ageing and Society [Online first]

2016

Pell C, Allotey P, Evans N, Hardon A, Imelda JD, Soyiri I, Reidpath DD. (2016) Coming of age, becoming obese: a cross-sectional analysis of obesity among adolescents and young adults in Malaysia. BMC Public Health 16:1082 doi:10.1186/s12889-016-3746-x

2015

Allotey P, Reidpath DD, Evans N, Devarajan N, Rajagobal K, Bachok R, Komahan K, The SEACO Team (2015) Let’s talk about death: Data collection for verbal autopsies in a demographic and health surveillance site in MalaysiaGlobal Health Action.  jul. 2015. ISSN 1654-9880. doi:http://dx.doi.org/10.3402/gha.v8.28219.

Evans, N., Pasman, H. R. W., Deeg, D. J. H., Onwuteaka-Philipsen, B. D., EURO IMPACT (2015), Older Dutch People's Self-Reported Advance Euthanasia Directive Completion Before and After the Enactment of the Euthanasia Law: A Time Trend Study (1998–2011). Journal of the American Geriatrics Society, 63: 2217–2219. doi: 10.1111/jgs.13697 [Online first]

2014

Evans N, et al. on behalf of EURO IMPACT (2014) How do general end-of-life goals and values relate to specific treatment preferences? A population-based study. Palliative Medicine. 28 (10) 1206–1212.

Evans N, Pasman HR, Donker G, Deliens L, Van den Block L, Onwuteaka-Philipsen B; on behalf of EURO IMPACT. End-of-life care in general practice: a cross-sectional, retrospective survey of ‘cancer’, ‘organ failure’ and ‘old-age/dementia’ patientsPalliative Medicine. 28 (7): 965-975.

Evans N, Costantini M, Pasman HR, Van den Block L, Donker GA, Miccinesi G, Bertolissi S, Gil M, Boffin N, Zurriaga O, Deliens L, Onwuteaka-Philipsen B, on behalf of EUROIMPACT (2014) End-of-life communication: a retrospective survey of representative GP networks in four countries. Journal of Pain and Symptom Management.  47(3): 604–619.e3

2013

Evans N, Pasman HRW, Vega Alonso T,  Van den Block L, Miccinesi G, Van Casteren V, Donker G, Bertolissi S, Zurriaga O, Deliens L, Onwuteaka-Philipsen B, on behalf of EUROIMPACT (2013) End-of-Life Decisions: A Cross-National Study of Treatment Preference Discussions and Surrogate Decision-Maker Appointments. PLoS ONE. 8(3): e57965. doi:10.1371/journal.pone.0057965. 

Gysels M, Evans N, Meñaca A, Higginson IJ, Harding R, Pool R, on behalf of  Project PRISMA (2013) Diversity in defining end of life care: an obstacle or the way forward? PLoS ONE. 8(7): e68002. doi:10.1371/journal.pone.0068002.

Forsyth T, Evans N (2013) What is autonomous adaptation? Resource scarcity and smallholder agency in ThailandWorld Development. 43: 56-66*

Andrew EVW, Cohen J, Evans N, Meñaca A, Harding R, Higginson IJ, Pool R and Gysels M. on behalf of Project PRISMA (2013) Social-cultural factors in end-of-life care in Belgium: a scoping of the research literaturePalliative Medicine 27: 131. 

2012

Evans N, Pasman HR, Payne SA, Seymour JE, Pleschberger S, Deschepper R, Ontwuteaka-Philipsen BD, on behalf of EuroImpact. (2012) Older patients' attitudes towards and experiences of patient-physician end-of-life communication: a secondary analysis of interviews from British, Dutch and Belgian patients. BMC Palliative Care. 11:24. 

Evans N, Meñaca A, Koffman J, Harding R, Higginson IJ, Pool R, Gysels M on behalf of Project PRISMA. (2012) Cultural competence in end-of-life care: terms, definitions and conceptual models from the British literature. Journal of Palliative Medicine 15(7): 812-820. 

Evans N, Meñaca A, Andrew EVW, Koffman J, Harding R, Higginson IJ, Pool R, Gysels M on behalf of Project PRISMA. (2012) "Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care from the United Kingdom." Journal of Pain and Symptom Management 43(2):261-86. 

Evans N, Bausewein C, Meñaca A, Andrew EVW, Harding R, Higginson IJ, Pool R, Gysels M on behalf of Project PRISMA (2012). A Critical Review of Advance Directives in Germany: Attitudes, Use and Healthcare Professionals' Compliance. Patient Education and Counseling 87(3): 277–288. 

Gysels M, Evans N, Meñaca A, Andrew E, Bausewein C, Gastmans C, Gomez-Batiste X, Gunaratnam Y, Husebø S, Toscani F, Higginson IJ, Harding R, Pool R., on behalf of Project PRISMA (2012) “Culture is a Priority for Research in End of Life Care in Europe: a Research Agenda.Journal of Pain and Symptom Management 44 (2): 285–294. 

Gysels M, Evans N, Menaca A, Andrew E, Toscani F, Finetti S, Pasman R, Higginson I, Harding R, Pool R on behalf of Project PRISMA (2012) Culture and End of Life Care: A Scoping Exercise in Seven European Countries. PLoS ONE 7(4): e34188. 

Meñaca A, Evans N, Andrew EVW, Toscani T, Finetti S, Gómez-Batiste X, Higginson IJ, Harding R, Pool R, Gysels M on behalf of Project PRISMA (2012) "End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal". Critical Reviews in Oncology/Hematology 82: 387–401. 

2011

Evans N, Meñaca A, Andrew EVW, Koffman J, Harding R, Higginson IJ, Pool R, Gysels M on behalf of Project PRISMA. (2011) “Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy.BMC Health Services Research 11:141. 

Oral presentations

Evans N, et al. on behalf of PRISMA. Research on culture and values in palliative care – the experience of PRISMA. 8th Research Congress of the European Association for Palliative Care. Palliative Medicine, 2014; 28 (6): 547 [Invited Speaker]

Evans N, et al. on behalf of EURO IMPACT. Life-sustaining treatment preferences: social support more important than health? 8th Research Congress of the European Association for Palliative Care. Palliative Medicine, 2014; 28 (6): 558

Evans N, Pasman HRW, Vega Alonso T,  Van den Block L, Miccinesi G, Van Casteren V, Donker G, Bertolissi S, Zurriaga O, Deliens L, Onwuteaka-Philipsen B, on behalf of EUROIMPACT. End-of-life medical treatment preference discussions and surrogate decision-maker appointments: Evidence from Italy, Spain, Belgium and the Netherlands. 4th International Society of Advance Care Planning and End of Life Care. Melbourne. BMJ Supportive & Palliative Care, 2013; 3(2): 235. [Plenary Session 2 (Legal)]

Evans N, Patient-doctor communication in the last phase of life. 2nd International Seminar of the PRC and EAPC RN, Ghent, Belgium Oct 18-19, 2012.

Evans N, Pasman HR, Payne SA, Seymour JE, Pleschberger S, Deschepper R, Ontwuteaka-Philipsen BD, on behalf of EuroImpact. Older Patients' Experiences of Patient-Physician End-of-Life Communication: Evidence from the United Kingdom, Belgium and the Netherlands. 7th Research Congress of the European Association for Palliative Care. Palliative Medicine, 2012; 26 (4): 390.

Evans N. Advance care planning in primary practice. ICER Meeting, December 7th 2011, Academy House, Brussels

Evans N, Andrew EVW, Meñaca A, Pool R, Gysels M, on behalf of PRISMA. Physician Assisted Suicide, Euthanasia and Palliative Sedation: Attitudes and Incidence in Germany. 11th Congress of the European Association for Palliative Care 18th-21st May 2011.

Evans N, Andrew E, Meñaca A, Pool R, Gysels M, on behalf of PRISMA. Communication and Minority Ethnic Groups: The British Experience. 6th Research Congress of the European Association for Palliative Care. Palliative medicine, 2010; 24 (4 Supplement 1):S36.

Evans N, Pool R, Meñaca A, Gysels M. Making culture relevant to end-of-life care practice: an overview of approaches to cultural competency. 10th Congress of the European Association for Palliative Care 7th-10th May 2009.

Posters

N Evans, HR W Pasman, DJH Deeg, BD Onwuteaka-Philipsen (2015) Older dutch people’s self-reported advance euthanasia directive completion before and after the enactment of the euthanasia law: A time trend study (1998–2011) BMJ Support Palliat Care 2015;5:Suppl 2 A49 doi:10.1136/bmjspcare-2015-000978.15

Evans N, Pasman HRW, Vega Alonso T,  Van den Block L, Miccinesi G, Van Casteren V, Donker G, Bertolissi S, Zurriaga O, Deliens L, Onwuteaka-Philipsen B, on behalf of EUROIMPACT (2013) End-of-Life Decisions: A Cross-National Study of Treatment Preference Discussions and Surrogate Decision-Maker Appointments. 13th World Congress of the European Association for Palliative Care 30th May - 2nd June 2013. 

Evans N, Meñaca A, Andrew EVW, Koffman J, Harding R, Higginson IJ, Pool R and Gysels M, on behalf of PRISMA. Systematic Review of Reviews of End-of-Life Care for Minority Ethnic Groups in the UK and a Critical Comparison with Policy Recommendations from the End-of-Life Care Strategy. 11th Congress of the European Association for Palliative Care 18th-21st May 2011.

Evans N, Meñaca A, Andrew EVW, Bausewein C, Harding R, Higginson IJ, Pool R and Gysels M, on behalf of PRISMA. A Critical Review of Advance Directives in Germany: Attitudes, Use and Physician Compliance. 11th Congress of the European Association for Palliative Care 18th-21st May 2011.

Reports

Evans N, Meñaca A, Andrew E, Pool R, Gysels, M. on behalf of PRISMA. (2009) Culture and end-of-life care: a scoping exercise of eight European countries. Unpublished report PRISMA.

Evans N. (2008) Karen Livelihoods: A study of trends and opportunities in Mae Hong Son province, Thailand. Unpublished report. Karen Hilltribes Trust.*

*Before getting involved in palliative care research, Natalie conducted research on livelihoods, poverty and social vulnerability in Karen villages in Mae Hong Son province, Thailand and on attitudes towards environmental degradation and conservation practices amongst Thai and Hmong farmers in Chiang Mai province, Thailand